Written by: Ksenia Kiseleva, CMHANL Summer Student

Patient-oriented research (POR) involves collaboration and co-evaluation between patients and researchers. People with lived experience (PLE) provide health authorities and researchers with valuable expertise and knowledge on what works and does not work in the mental health and addictions (MH&A) system. Regular PLE evaluations are therefore essential for effective changes to be made to the healthcare system. The Canadian Mental Health Association-Newfoundland and Labrador (CMHA-NL) recently published an independent report, “Embracing Experiences”, in which 40 individuals shared their experiences with MH&A services in Newfoundland and Labrador. The report adopted a narrative style in…


Brianna joined NL SUPPORT’s Patient Advisory Council (PAC) in early 2020 after hearing her grandmother, Dorothy, an active and long-time member of the council, talk about the many exciting opportunities that come with being a PAC member.

An aspiring social worker, she has a particular interest in mental health and the health and well-being of Indigenous peoples and their communities. She is also passionate about health care accessibility in rural areas, and is currently a family and client advisor with the Burin Hospital.

Brianna believes that it is important for youth in the province to have a good understanding of…


Sarah joined NL SUPPORT’s Patient Advisory Council in September of 2020 after learning about it at a presentation during the MUN Student Volunteer Bureau annual Expo. An avid volunteer in the community, she is a member of the Premier’s Youth Council and created the Gander chapter of MUNHope, a non-profit student-led organization focused on community outreach.

With the goal of becoming a physician after completing her Bachelor of Science degree, Sarah felt that having the perspective of a patient partner would be helpful once she is on the other side of the patient-provider relationship.

As a patient partner, she has…


Written by: Cindy Holden, RDH, MPH

It is well documented that those who have dysphagia — disordered swallowing altering their ability to safely and comfortably eat and drink — are at risk of serious medical consequences. For older adults, these consequences such as aspiration pneumonia (a type of pneumonia that might occur if a person breathes something in instead of swallowing it), dehydration, malnutrition, and asphyxiation are highly associated with emergency department and hospital admissions. …


Consider enrolling for Med 6268 — Patient Engagement in Health Research!

Written by: Holly Etchegary, PhD, Community Health and Humanities; Patient Engagement Academic Lead, NLSUPPORT, Faculty of Medicine, Memorial University

Med 6268 is a graduate-level course offered through the Faculty of Medicine at Memorial University. It is the first graduate course of its kind in Canada and remains one of the only graduate credit courses about patient engagement.

This interactive, online course explores how to partner with patients in health research and health systems decision making. While the concept is growing, patients as research partners remains a new idea for…


Mandy Penney joined NL SUPPORT and Quality of Care NL as a patient partner in 2017. She has undergraduate degrees in psychology and social work, and is currently a student in Memorial University’s MBA program (Social Enterprise and Entrepreneurship). A long-time volunteer in the long term care sector, she is particularly interested in aging and improving the health care system for older adults, and felt that joining NL SUPPORT’s patient advisory council (PAC) would be a beneficial way to make an impact.

In addition to attending and providing valuable feedback at NL SUPPORT and Quality of Care council meetings, she…


Written by Melissa Ennis, Communications Advisor, Health Accord NL

In April, Health Accord NL, the provincial Task Force on Health, submitted its Interim Report to the Premier and Minister of Health and Community Services. The report outlines the overall vision and direction developed by the Task Force over the last number of months in consultation with the public, stakeholders and key informants.

Health Accord NL’s Interim Report was submitted on April 16, 2021

As mentioned in the report, Health Accord NL’s objective is:

To use evidence, strategies, and public engagement to create a plan for a 10-year Health Accord that will improve health in Newfoundland and Labrador, and to do so…


Julie started off as a patient partner with Quality of Care/Choosing Wisely NL and is now an active member of NL SUPPORT’s Patient Advisory Council (PAC). In addition to the PAC, she is involved in NL SUPPORT’s Training and Patient-Oriented Research (POR) Skills Committee, the mandate of which is to assess POR training and capacity needs and develop training to support capacity building, knowledge translation and patient engagement.

Julie strongly believes in the important role that patients and caregivers play in health care decision making, and felt that joining NL SUPPORT’s/Quality of Care NL’s advisory council would be an effective…


Learning Health Systems (LHS) are systems in which “science, informatics, incentives, and culture are aligned for continuous improvement and innovation, with best practices seamlessly embedded in the delivery process and new knowledge captured as an integral by‐product of the delivery experience” (Institute of Medicine, 2015). LHS rely on vision, data, analytics, leadership, organization and culture to foster and achieve improvements in practice and systems of care. They merge healthcare delivery with research, data science, and quality improvement processes, continuously informed by practice and seeking to influence practice in turn.

The concept of Eastern Health Regional Health Authority as a “Living…


Using public engagement to inform a 10-year health transformation in NL

In November 2020, the Government of Newfoundland and Labrador (NL) announced a Task Force on Health known as Health Accord NL. Its objective? To use evidence, strategies and public engagement to create a 10-year Health Accord that will improve health in Newfoundland and Labrador, and to do so within the fiscal envelope of the province.

It is no secret that when it comes to health, Newfoundland and Labrador consistently has some of the worst outcomes in the country. NL has the worst life expectancy, highest mortality rates for cancer, cardiac disease and stroke, and the highest rate of chronic disease…

NL SUPPORT

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